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DOI

10.1136/medethics-2013-101427

Type

Journal article

Journal

J Med Ethics

Publication Date

12/2015

Volume

41

Pages

987 - 989

Keywords

Autonomy, Clinical trials, Informed Consent, Research Ethics, Research on Special Populations, Amyotrophic Lateral Sclerosis, Compassionate Use Trials, Disease Progression, Drug Approval, Drug Industry, Health Services Accessibility, Humans, Legislation, Drug, Neuroprotective Agents, Paternalism, Personal Autonomy, Physician-Patient Relations, Power (Psychology), Quality of Life, Randomized Controlled Trials as Topic, Rare Diseases, Research Subjects, Riluzole, Self Report, Uncertainty